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What the closure of the Independent Living Fund means: Natassia and Petrell’s Story

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What the closure of the Independent Living Fund means: Natassia and Petrell’s Story

Natassia and Petrell’s Story

Natassia is a 21year old young woman who lives at home with her parents in South Norwood, Croydon. She wants to live an independent life with choice and control over what she does and who she does it with. Her support package from the local Council is £175 per week. This is not enough to cover the support she needs yet the Council are refusing to raise it, giving her mother the only alternative of sending her to live in residential care.

Natassia has Cerebral Palsy and requires assistance with washing, dressing,***** She wants to be active and to enjoy social networks and get of the house so she uses her budget to pay to go to a day centre of her choice in South Croydon three days a week. This costs £141 and leaves little left in the budget for meeting her needs for the rest of the week. The Council say if it is too expensive from her budget she should choose to go somewhere else but other day centres in the area are full of older people who Natassia doesn’t relate to and aren’t appropriate. The cost of getting out of the house three times a week then means that there isn’t enough money left in the budget to pay for personal assistants to support Natassia get up, washed and dressed and her parents have to rise at 4.30am to do this. They are happy to do this on the weekend but they find it too much every day of the week.

The Council says that if this is a problem, Natassia should be sent into residential care.

This is despite the fact that residential care would be more expensive than raising the level of the personal budget Natassia receives, costing £225 in rent before any costs for support and personal care.

The family home has been adapted so it is accessible and meets Natassia’s needs. It is where she wants to live.

Had the Independent Living Fund been open Natassia could have applied for support to meet her full range of needs, to receive personal assistance support that allowed her to live with her family while allowing them to live their own lives while still being able to maintain her social networks and to be part of the community.

 

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